Calendar »  Feb 2011 » Happy Hour Fundraiser for EB

Happy Hour Fundraiser for EB

When  Wed, February 9,6:00 pm - 8:00 pm
Where  The Hill, 416 3rd Avenue, New York, NY (map)
Admission  Open
Description 
Please join DebRA for a few drinks with friends and also bring greater awareness about EB! Wednesday, Febuary 9, 2011, 6:00 pm - 8:00 pm The Hill, 3rd Avenue (between 29th and 30th Street), New York, NY Check out The Hill's website: www.thehillny.com Costs: $30 for Open Bar (House Liquor, Beer, Wine, Champagne & Sangria). Pay at the door. The first 20 people will receive a Debra tote bag! ABOUT DEBRA: Dystrophic Epidermolysis Bullosa Research Association of America(DebRA) is the only national non-profit organization dedicated to funding research and supportive services for those affected with Epidermolysis Bullosa (EB). EB is a devastating and sometimes fatal rare genetic condition that affects 1 out of every 50,000 live births. Patients with EB have skin so fragile that any rubbing, friction or slight trauma can cause severe blistering and sores- inside and outside their bodies. There is NO cure and the only treatment is wound care, bandaging and pain management. Please visit www.debra.org for more information or Facebook us at www.facebook.com/debraofamerica. If you have any further questions, contact the DebRA Office at 212.868.1573 or email us at staff{at}debra.org.
Website  (click here)


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